On a good day, I’ll wake up in the morning feeling like I can get through the day. My fatigue is bad, but not unbearable. It will take me about 15 minutes to get out of bed, and once the dizziness is gone, I can go to the bathroom and brush my teeth. I will rest after this, and have a wash or shower once my pain medications have kicked in. The pain medication does not completely rid me of pain, but it makes me much more functional than I would be without it.
I will need to rest before getting my breakfast, and rest again before drying my hair. After getting dressed and putting on makeup, I will have just enough energy to leave the house. On a really good day, which is rare, I will meet a friend for lunch. Anxietymeans that I will need to be picked up by them, or given a lift by my dad, but the main thing is that socializing.
Once I’m home, I will rest for the duration of the day, having a few hours nap in the late afternoon if I’m able to sleep. Tea will be something easy to prepare, or it might be a luxury.
My bad days tend to be very bad. I’m in a lot more pain. Pain meds won’t touch it – even though I will need to take more than on a good day. I’m dizzy, headachy, shaky, nauseous, and absolutely exhausted. I will get up in the morning, but it will take me at least double the time as a good day.
I will struggle to stay awake because of fatigue, but I will struggle to sleep because of pain and nausea. I won’t have the energy to shower or wash. I will make it to the living room for a coffee, brush my teeth after a rest, and “wash” myself with face wipes, after another rest. Breakfast will be anything I can – such as an apple. It’ll have to be something light.
I will struggle to brush my hair, and I will find the comfiest, loose clothing I can find. The fibromyalgia makes my skin very sore (as if I’m burnt and bruised all over), so I have to think about the tightness and the material in the clothes I wear. I will take my laptop into the living room, and try to concentrate on a program, casual game or video clips. My mood will be low, because I’m not able to do much at all. I will feel fed up and I’ll be likely to isolate myself from others.